I've been researching support groups or contacts that can identify with what Tom and the rest of our family have been experiencing, and I located a charitable organization called The Seany Foundation (see link at right). The foundation was created in honour of Sean Robins, diagnosed with Ewing's at the age of 16. From the pictures and the information I tracked down on the 'net, you can tell that he and his family are special people. They are funding medical pediatric and Ewing's research projects so that there are fewer cases like Sean's and Tom's. 100% of every dollar they raise goes to research - I don't know of too many charitable organizations that can do that.
I was deeply touched when his mom replied to my request for more information in person. This is the amazing thing: someone who doesn't even know us took the time to read every page on our blog and offer me her support and wisdom. Bless you, Amy.
Tom seems to be feeling much better today. He finally got a chance to sleep in till a more teenagery hour for the first time in a week - Jeanie and I were out the door fairly early to get her down to her Driver's Licence exam... which SHE PASSED! (cue whistles, cheering and fireworks!). The whole waiting room applauded with me upon her 'triumphant return'.
Tom had lots of visitors Wednesday night and during the day today: Stephanie, Ocean, Katy, Uncle Chris, Uncle Brian, Uncle Harvey and Auntie Carol, and Wendy. (Brian, Chris, Mike and Harvey played golf this afternoon as well).
In between that I juggled a chiropractor appointment, a massage, a haircut and colour for myself... hey - when we have a day 'off' from medical stuff I have got to motor! I appreciated the opportunity to do some things; no doubt Thomas appreciated the break from me!
Tom needs to be back at the clinic first thing in the morning on Friday to check his levels again before the weekend, as they will have likely dropped again - and if so, that will mean another transfusion. He's still got some soreness in his left leg due to the fall yesterday, and his bones are starting to ache from the GCSF injections (which is normal in between chemo rounds). If his counts are good, then we'd like to get to a movie on Friday or sometime during the weekend. Thomas would like to go to a public place that is NOT an hospital.
P.S. Did I forget to mention yesterday's wonderful dinner, courtesy of our friends, the Drummonds? And that Ann, a friend of my cousin Wendy's, wants to cook dinner for us on Friday night? Yummmmm. We are thankful for their talents and their generosity. We - and our tummies - are so blessed.
TTFN,
Thomas' Mom
